In a new ABC News special, Emma Heming Willis has provided a moving and candid update on her husband, actor Bruce Willis, and his battle with frontotemporal dementia (FTD). Despite his ongoing health struggles, she says the family still sees “glimpses” of the man they know and love.
The Physical and Mental Toll of FTD
Emma revealed that while the 70-year-old actor remains “very mobile” and in “great health overall,” his brain is failing him. His greatest challenge is the loss of language, a common symptom of FTD which affects a person’s personality, behavior, and ability to communicate. She shared that the family has had to adapt new ways to communicate with him as his language skills fade.
The diagnosis has been a deeply isolating experience for the family. In the early stages, Emma felt compelled to handle all caregiving responsibilities on her own, even keeping him away from social gatherings. However, she has now realized the importance of seeking help and support from a community.
From Caregiver to Advocate
Inspired by her experiences, Emma Heming Willis has taken on a new role as an advocate for caregivers. She has written a book titled The Unexpected Journey: Finding Strength, Hope, and Yourself, which is scheduled to be released on September 9th. The book, she hopes, will serve as a source of guidance and inspiration for others facing similar struggles. By going public with their family’s story, Emma aims to raise awareness about FTD and reduce the stigma surrounding it.